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Thoughts. Hope. Encouragement.


Jun 16, 20211 min read
Freedom!
X-rays, discussions with the genetics team regarding NF1, and a visit to fracture clinic resulting in his casts coming off! Yay!


Jun 3, 20211 min read
Sticks & Bones
We had our appointment with the bone doctor, endocrinology, on Wednesday, so I thought it was a good idea to give you a further update...


May 23, 20211 min read
So many appointments
Another month has passed since Henry's last blood tests! Hard to believe how fast time is passing by lately...
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