Jun 16, 20211 min readFreedom!X-rays, discussions with the genetics team regarding NF1, and a visit to fracture clinic resulting in his casts coming off! Yay!
Jun 3, 20211 min readSticks & BonesWe had our appointment with the bone doctor, endocrinology, on Wednesday, so I thought it was a good idea to give you a further update...
May 23, 20211 min readSo many appointmentsAnother month has passed since Henry's last blood tests! Hard to believe how fast time is passing by lately...